Below are highlights of news and developments in the brain tumor public policy advocacy, compiled by NBTS Research & Advocacy Manager, Kacey Troy Ribnik, and Director of Advocacy, Lainey Titus Samant:
Take Part in Brain Tumor Action Day!
If you are unable to attend Head to the Hill this year, there is still an easy way to join with our advocates in Washington, D.C. On Tuesday, May 8, as brain tumor advocates descend on Capitol Hill you can help amplify their voices by taking part in our National Brain Tumor Society Action Day. Keep an eye out for an email on May 8, which will provide all the information you need to contact your members of Congress on a policy issue that affects the brain tumor community.
May is Brain Tumor Awareness Month
Be sure to follow along on this blog and on all of the NBTS social media pages for upcoming activities happening during Brain Tumor Awareness Month. We also ask volunteers from the brain tumor community across the country to ask your respective governors to declare May Brain Tumor Awareness month in your state, in conjunction with the federal designation.
Childhood Cancer STAR Act Passes the Senate
The U.S. Senate passed the Childhood Cancer STAR Act (S.292) by unanimous consent in March. The bill will now move to the U.S. House of Representatives (H.R.820). Let’s take action today to urge the House of Representatives to pass this bill so it may move to the president’s desk and be signed into law. Click here to send a message to your Representative now!
The STAR Act will help stimulate more effective pediatric brain tumor research and could lead to better treatments that extend life and improve patients’ quality of life.
Medical Research Funding – Appropriations Requests for Fiscal Year 2019 (FY19)
It’s time to take action to advocate for continued funding for medical research funding through the National Institutes of Health (NIH), the National Cancer Institute (NCI), and the Peer Reviewed Medical Research Program (PRCRP) under the Department of Defense (DOD) for FY19.
Click here to view an educational web training that provides an overview of how and why the federal government funds medical research through the NIH, NCI, and the PRCRP. You’ll learn why advocating for this funding is crucial to advancing research for brain tumors, how the Congressional budget process works, and how we as advocates can influence how the government appropriates funds for specific programs.
Then, take action to request an increase to the Fiscal Year 2019 budget for the NIH, NCI, and PRCRP.
Defeating Brain Tumors – Advancing Discoveries for Glioblastoma (GBM)
National Brain Tumor Society will host a first-of-its-kind Congressional Briefing on Tuesday, May 15th for members of Congress and their staff to inform these policymakers on the experience of living with a brain tumor, the quest to develop new and more effective treatments for patients, and how Congress can help foster future progress. The event is being hosted by Senator Lindsey Graham (SC), with co-host Congresswoman Barbara Comstock (VA), in cooperation with Congressman Jim Langevin (RI), and with honorary co-hosts Senator Ed Markey (MA) and Senator Susan Collins (ME).
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