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Author Archives: Steven LaFond

#WhyNotDevin: Turning Pain into Hope for Families

Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […]

CCAM Guest Blog: Luke’s Story

 ‘Your son has an egg sized tumor on his brain’. These are the words I heard on August 1, 2016, and these are the words no parent ever thinks they will hear. Seven days prior, my then 15-month old son, Luke, had woken in the morning and vomited. My husband and I thought he […]

NBTS at the NH Motor Speedway: Matt Tifft Hosts Brain Tumor Survivors

This past Saturday, the National Brain Tumor Society hit the New Hampshire Motor Speedway to watch Matt Tifft race in the NASCAR Xfinity Series. Over the past two years, Matt has been a vocal brain tumor advocate, using his own survival story to urge Congress to support funding for brain tumor research. That, in itself, […]

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