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CCAM and NBTS: A recap of pediatric brain tumor news

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As another Childhood Cancer Awareness Month (CCAM) comes to a close, the National Brain Tumor Society wants to thank all of you for attending our events, sharing your stories, and doing your part in the fight against all pediatric brain tumors and cancers. At the beginning of September, we posted about what you could do to support the cause and thousands of you heard the calls to action and responded. We want to highlight your achievements and what NBTS was able to achieve in September in the name of pediatric brain tumor patients and survivors.

Advocacy

Rally for Medical Research 2015Because of your calls, emails, and meetings with your members of Congress, the STAR Act has added several co-sponsors. This key legislation, which NBTS helped craft and get introduced, will improve access to critical tissue samples, fund state-level pediatric epidemiology efforts, create models to study childhood cancer survivors throughout their lives, and expand research funding.

NBTS advocates converged on Capitol Hill to participate in the Rally for Medical Research, the Congressional Childhood Cancer Summit, the CCAM White House Briefing, and the Golden Toast for Childhood Cancer.

Brain tumor advocate, Lisa Peabody,even had her editorial about the STAR Act and how Congress can give hope to children with brain tumors published in the policy-based publication The Hill. To learn what you can do, please check out our advocacy page.

Partnerships for Pediatric Research

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In September, NBTS also announced a new partnership with The V Foundation for Cancer Research. The V Foundation has placed a focus on funding in pediatric cancer research this year, and has agreed to collaborate with NBTS of key research efforts which will be the cornerstone of the research arm of our Project Impact initiative, the Defeat Pediatric High-Grade Glioma Research Collaborative.

The Defeat Pediatric High-Grade Glioma Research Collaborative has also released the names of its Strategic Scientific Advisory Committee (SSAC).

As the months progress, we’re looking forward to sharing more about the Collaborative and the latest in pediatric brain tumor news.

None of this is possible without your help. Please consider a gift to support new research and advocacy.

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