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Tag Archives: advocacy

Recapping Head to the Hill 2017

They came from 38 states. 308 brain tumor patients, caregivers, and supporters made their way to our nation’s capital to advocate for policies that will benefit the brain tumor community as part of Head to the Hill 2017. Despite high-profile and contentious debates happening on Capitol Hill, NBTS and our advocate were determined to ensure Congress […]

Remembering Jaclyn Sabol Patton

In life, if you should ever have the privilege of meeting someone as special as Jaclyn Sabol Patton, do not hesitate to get to know them on a deep, meaningful level. The opportunity will surely be a blessing. Jaclyn was diagnosed with a brain tumor in 2010. Where some fall into despair, she never said, “Why […]

Q&A: How Social Media, Hashtags, and Dedicated Advocates are Shaping the Brain Tumor Community

The following is a Q&A* with Charlie Blotner and Liz Salmi, founders of the #BTSM Twitter Chat. The chats take place the first Sunday evening of each month at 6pm PT/9pm ET. They collaborated on the answers, which have been lightly-edited for length and clarity.  Q: For the non-social media savvy in the audience can […]

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