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Tag Archives: advocacy

Guest Blog: The Powerful Platform Offered by National Brain Tumor Society

                    “It is very unlikely that you will not have a recurrence,” my neuro-oncologist said softly, leaning in to fold his hands together, interlocking his fingers, “but you have many positive prognostic indicators in your favor, including your age, IDH1 mutation status, and general good health.” […]

From the CEO’s Desk: Let’s Lean In During Childhood Cancer Awareness Month

About this time last year, the National Brain Tumor Society was down in Washington, D.C. at the famous National Press Club with a number of partners and collaborators to officially announce the launch of “Project Impact: A Campaign to Defeat Pediatric Brain Tumors,” our new fundraising effort to help resource the Defeat Pediatric Brain Tumors […]

Guest Blog: Not Your Average “Joe” – Connecting with Your Members of Congress

Rich Paisner is a 12-year astrocytoma survivor and a Massachusetts brain tumor advocate. Rich lives in Newton, MA with his wife and three daughters. “Hi, I’m Joe. I’m so happy to be here.” After a series of calls and emails, those were the first words we spoke to one another. I’m pretty sure I won’t […]

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