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Tag Archives: brain tumor community

Lighting Up Like Fireworks: A First-Person Brain Tumor Journey Captures Headlines

Today is “Rare Disease Day” in America. Brain tumors are technically categorized as a rare disease, though at National Brain Tumor Society we like to say, “it’s the rare disease that everyone’s heard of.” In other words, brain tumors are’t rare enough – they are still all-too-common for our liking. Yet, despite the fact that […]

this is… not the end. A brain tumor documentary concludes, celebrating life

“Life is fragile,” Jennifer Keenan Giliberto said. The Georgia photographer’s work shows the complex fragility and strength of the human spirit. She’s also a brain tumor survivor. In May of 2015, I covered her largest project to date, this is … documentary. The photographic documentary followed the lives of a married couple, Josh and Jenna, […]

From the CEO’s Desk: The Future of National Healthcare Policy

National Brain Tumor Society’s mission is to find better treatments, and ultimately a cure, for all brain tumors. And our interim ‘Big Hairy Audacious Goal’ is to help turn a brain tumor diagnosis into a chronic, manageable disease for all patients by 2025. As such, the primary focus of our programs — including our public policy […]

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