News & Blog

Tag Archives: Community

#WhyNotDevin: Turning Pain into Hope for Families

Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […]

Public Policy and Brain Tumor Advocacy Updates From August 2018

Below are highlights of news and developments in the brain tumor advocacy and public policy, compiled by NBTS Research & Advocacy Manager, Kacey Troy Ribnik: National Brain Tumor Society Honors Senator John McCain We were profoundly saddened to learn of the passing of Senator John McCain following a year of treatment for glioblastoma. His loss further […]

Guest Blog: A Quest for Cures, Twenty Years in the Making

Rachel Schultz recently joined the National Brain Tumor Society as our new Director of Development for the New England Region. The following is her story of why she joined the fight. August 9, 2016 is the last time I saw my wonderful, kind, caring, lovable, singing-in-falsetto, Boston-sports-loving father alive. On August 11, he passed away at the age […]

Share