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Tag Archives: NCI

Video Blog: Advocate on Behalf of the Brain Tumor Community at Head to the Hill 2015

Over the years, the National Brain Tumor Society reports on the actions of our advocates and how important they are to making vital changes in brain tumor policy and research. But have you ever read about our “advocates” and wondered what exactly do? Advocacy sounds great, but what does mean to be an advocate or advocate […]

Can this treatment help me live a longer and better life?

Why was I asked to sit on a panel with two top officials from the U.S. Food and Drug Administration (FDA), two leading neuro-oncologists, an associate professor of neuropsychiatry, and an executive from the biopharmaceutical company, Genentech? Because, as a five-year brain tumor survivor and volunteer advocate with the National Brain Tumor Society, I want […]

Creating Meaningful Change, With a Little Help From our Friends

There are only four FDA-approved therapies to treat brain tumors. And in the last 17 years there have been approximately 75 potential new drugs that have failed during the clinical trial process to prove they are safe and effective for patients, while only three that have won FDA approval[1]. That is a 25:1 failure ratio. […]

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