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Tag Archives: NCI

National Brain Tumor Society’s 2015 Legislative Agenda

To guide our public policy advocacy efforts each year, National Brain Tumor Society creates an annual “Legislative Agenda.” Our yearly Legislative Agenda reflects the larger strategy and goals of the Organization, and our activities in carrying out the agenda directly influences our ability to deliver on our mission of better treatments, and ultimately a cure, […]

Video Blog: Advocate on Behalf of the Brain Tumor Community at Head to the Hill 2015

Over the years, the National Brain Tumor Society reports on the actions of our advocates and how important they are to making vital changes in brain tumor policy and research. But have you ever read about our “advocates” and wondered what exactly do? Advocacy sounds great, but what does mean to be an advocate or advocate […]

Can this treatment help me live a longer and better life?

Why was I asked to sit on a panel with two top officials from the U.S. Food and Drug Administration (FDA), two leading neuro-oncologists, an associate professor of neuropsychiatry, and an executive from the biopharmaceutical company, Genentech? Because, as a five-year brain tumor survivor and volunteer advocate with the National Brain Tumor Society, I want […]