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Tag Archives: Patient life

From the CEO’s Desk: Reflecting on 2018

Greetings and happy holidays to the brain tumor community, Before we turn over a new year, I wanted to take the opportunity to thank our amazing community of supporters, advocates, volunteers, and partners for making 2018 another year of great progress and momentum in the effort to conquer and cure brain tumors. Though we know […]

Guest Blog: How to Talk to Your Kids About Cancer

As a father with an aggressive brain cancer, I’ve opted against elaborate metaphors and in favor of candid speech when talking about cancer with my children. In May 2016, I underwent an awake craniotomy to remove a large primary tumor from my brain. Two weeks later, my neuro-oncologist shared my diagnosis: I had an aggressive […]

#WhyNotDevin: Turning Pain into Hope for Families

Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […]

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