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Tag Archives: pediatric brain tumor

From the CEO’s Desk: Moving Deeper Into the Brain Tumor Precision Medicine Era

Last week, a colleague sent me a news story about a young girl whose glioma was in an advanced state and not responding to conventional treatments. Doctors from Dana-Farber/Boston Children’s Hospital’s pediatric neuro-oncology team tried a last-resort treatment for the young patient, and, miraculously, three years later, she has not only survived, but is thriving. […]

I didn’t want to go to Head to the Hill: Here’s why I did.

I don’t remember anything I learned in school about how our government works. American Government was taught in 8th grade, the year when I cared much more about wearing ‘Candies’ than listening to Ms. Kaufman talk about checks and balances and the three branches of the government. I was way too focused on Brian, the boy […]

From the CEO’s Desk: Busy Season for Public Policy Kicks Into Gear

The first quarter of the year for the National Brain Tumor Society (NBTS) – and any other organization engaged in proactive advocacy – is a particularly busy time in the area of public policy and government relations. While research initiatives often spillover year-to-year and remain ongoing (like our flagship research initiative, the Defeat GBM Research Collaborative, which is a […]

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