News & Blog

Tag Archives: pediatric

Public Policy and Brain Tumor Advocacy Updates From September 2018

Below are highlights of news and developments in brain tumor advocacy and public policy compiled by NBTS Research & Advocacy Manager Kacey Troy Ribnik and Director of Advocacy Lainey Titus Samant: New Increases for Medical Research Funding Congress recently passed a Fiscal Year 2019 (FY19) spending bill that includes increased funding for medical research. This action continues a […]

#WhyNotDevin: Turning Pain into Hope for Families

Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […]

I’m Possible: A Pediatric Brain Tumor Patient and Hero

Our family was no stranger to cancer. My mother fought with it, five times throughout her life, before it finally took her from us. It still makes my stomach do flips. My father-in-law is constantly battling the skin cancer that loves to attack fair-skinned redheads. Yet, to have our son diagnosed with a brain tumor […]

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