News & Blog

#WhyNotDevin: Turning Pain into Hope for Families

Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […]

Brain Tumor Facts & Figures, September 2018: Long-Term Impacts of Pediatric Brain Tumors

Our ongoing series, “Brain Tumor Facts & Figures,” provides information and data that can be used in your advocacy, fundraising, and awareness-raising efforts by presenting statistics that can help convey the difficult realities our community is up against. This info can help make a case for support to your members of Congress, state legislators, family, […]

From the CEO’s Desk: An Agenda for Childhood Cancer Awareness Month 2018

Just over a week ago, the nation was deeply saddened by the news that United States Senator, statesman, war hero, and former presidential nominee, John McCain, had passed away following 13 months of treatment for glioblastoma. There was an outpouring of grief as well as reflection and remembrance of his remarkable life. Though his policies […]

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