News & Blog

Public Policy and Brain Tumor Advocacy Updates From September 2018

Below are highlights of news and developments in brain tumor advocacy and public policy compiled by NBTS Research & Advocacy Manager Kacey Troy Ribnik and Director of Advocacy Lainey Titus Samant: New Increases for Medical Research Funding Congress recently passed a Fiscal Year 2019 (FY19) spending bill that includes increased funding for medical research. This action continues a […]

#WhyNotDevin: Turning Pain into Hope for Families

Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […]

Guest Blog: Children Shouldn’t Run Out of Options

After multiple relapses of Medulloblastoma, brain cancer, our hearts have been unable to recover after hearing the life-altering words from our oncologist that there were no more treatment options available for our then ten-year-old daughter who had been fighting brain cancer since she was six years old and a Kindergartner. She has fought hard after […]

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