News & Blog

Guest Blog: Fighting for Change

Guest blogger Lisa Peabody is a volunteer advocate with the National Brain Tumor Society. Recently, she joined National Brain Tumor Society staff participating in the annual Alliance for Childhood Cancer Action Day.

#BTSM Chat: Patients and Caregivers Discuss What They’d Like to See Addressed in New Treatments

The first Sunday of each month brain tumor survivors, patients, family, and caregivers use Twitter to share experiences, ideas, and information. The Brain Tumor Social Media chat (#btsm) was started a little over a year ago by Liz Salmi.  The chats are moderated by Liz and Catherine Blotner and is promoted as a “patient-run Twitter […]

Your Experience. Your Voice. Your Treatment.

Earlier this year, we shared a number of blogs about our Clinical Trial Endpoints Initiative. National Brain Tumor Society is working with the FDA, the National Cancer Institute, medical academic researchers, clinicians, and the Jumpstarting Brain Tumor Drug Development Coalition (a group of other brain tumor-focused nonprofits and organizations), with the goal of developing action […]

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