News & Blog

#BTSM Chat: Patients and Caregivers Discuss What They’d Like to See Addressed in New Treatments

The first Sunday of each month brain tumor survivors, patients, family, and caregivers use Twitter to share experiences, ideas, and information. The Brain Tumor Social Media chat (#btsm) was started a little over a year ago by Liz Salmi.  The chats are moderated by Liz and Catherine Blotner and is promoted as a “patient-run Twitter […]

The (Critical) Case for Pediatric Brain Tumor & Cancer Advocacy

National Brain Tumor Society is one of many disease-based organizations to join the chorus of supporters of stronger funding for the National Institutes of Health (NIH). The agency – through the National Cancer Institute (NCI) and other institutes – is the largest funder of brain tumor research in the country. Dwindling investment in this agency […]

Your Experience. Your Voice. Your Treatment.

Earlier this year, we shared a number of blogs about our Clinical Trial Endpoints Initiative. National Brain Tumor Society is working with the FDA, the National Cancer Institute, medical academic researchers, clinicians, and the Jumpstarting Brain Tumor Drug Development Coalition (a group of other brain tumor-focused nonprofits and organizations), with the goal of developing action […]

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