News & Blog

#BTSM Chat: Patients and Caregivers Discuss What They’d Like to See Addressed in New Treatments

The first Sunday of each month brain tumor survivors, patients, family, and caregivers use Twitter to share experiences, ideas, and information. The Brain Tumor Social Media chat (#btsm) was started a little over a year ago by Liz Salmi.  The chats are moderated by Liz and Catherine Blotner and is promoted as a “patient-run Twitter […]

Your Experience. Your Voice. Your Treatment.

Earlier this year, we shared a number of blogs about our Clinical Trial Endpoints Initiative. National Brain Tumor Society is working with the FDA, the National Cancer Institute, medical academic researchers, clinicians, and the Jumpstarting Brain Tumor Drug Development Coalition (a group of other brain tumor-focused nonprofits and organizations), with the goal of developing action […]

From Head to the Hill to #BTVoice: BTAM Recap

Brain Tumor Awareness Month (BTAM) is an opportunity to educate the public about brain tumors on behalf of the 700,000 diagnosed and their families. This year, National Brain Tumor Society leveraged the focus on BTAM to share research, policy and resources with the community, as well as invite our community to share its own experiences […]

Share