Latest from the Blog

1. September 16, 2019

   Can Newly Approved “Tissue Agnostic” Drugs Benefit Pediatric High-grade Glioma Patients?

   

   Recently, the U.S. Food and Drug Administration (FDA) granted accelerated approval* to the drug Rozlytrek (entrectinib, Genentech/Roche**) as a treatment for patients, 12 years or older, whose tumors have a specific genetic defect known as an “NTRK gene fusion.”*** This is now the second drug that the FDA has approved to treat patients with this […]

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   Tags: brain cancer, brain tumor, Cancer, childhood cancer, Clinical trials, DIPG, FDA, GBM, glioblastoma, glioma, high-grade glioma, pediatric brain tumor, pediatric cancer, pediatrics, precision medicine, Treatment
2. September 5, 2019

   Guest Blog: “I would have given anything to trade places with him”

   

   On a family vacation in 2011, Mac tried to catch a seagull. Using his boogie board to shield his movements, he inched his way across the sand, closing on his target. With the determination and strong-will that defined him, Mac patiently stalked his target for 20 minutes, taking great care with each step as to […]

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   Tags: brain cancer, brain tumor, brain tumor community, Cancer, chemotherapy, childhood cancer, GBM, glioblastoma, Patient life, pediatric, pediatric brain tumor, pediatric cancer, pediatrics
3. August 25, 2019

   Mavericks & Lions Wanted: Remembering Senators John McCain & Ted Kennedy and America’s Stake in the Fight Against Glioblastoma

   

   What we can learn from Senators John McCain and Ted Kennedy on the shared anniversary of their respective passings, both from glioblastoma

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   Tags: advocacy, brain cancer, brain tumor, brain tumor community, Cancer, Defeat GBM, GBM, glioblastoma