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An Open Letter to President-Elect Donald J. Trump

National Brain Tumor Society is a nonpartisan organization. Our 501(c)(3) charity/nonprofit status requires it – and our mission to find better treatments and, ultimately, a cure for brain tumors, demands it. Because, no matter which political party controls the White House and/or Congress, brain tumor patients do not have the luxury of waiting to engage with policymakers until the next election cycle in two-years (for Congressional seats) or four-years (for presidential elections).

It is our duty and responsibility to the brain tumor community to continuously push our legislative agenda with policymakers in our nation’s capital, no matter who they are or what party they represent. We need to constantly tell these elected officials about the needs and challenges of the brain tumor community, and ask that they pursue policies that will accelerate and advance research that can ultimately lead to new medicines – and make this a national priority.

As such, the National Brain Tumor Society believes it is critical to our mission to begin – at this early transition stage – engaging with the Administration of President-Elect Donald J. Trump so that he and his key staff are aware of the issues, challenges and opportunities faced by the brain tumor community, and that we need their support in this difficult fight. This is the approach we’ve taken with previous Congresses and administrations. And, this is the approach we will always take to make sure we are influencing and driving public policy that improves the lives of brain tumor patients while laying the groundwork for new research and discoveries to uncover more effective treatments and, ultimately, a cure.

As such, we’ve crafted an “Open Letter” to President-Elect Donald J. Trump, advocating for him to make policies that advance brain tumor research and treatment development a priority from his first day in office. You can read the full letter here.


  • Sam A Mawn-Mahlau says:

    We really need to prioritize protecting ACA, and especially provisions regarding pre-existing conditions and lifetime caps on benefits, both of which are critical to survivors.

    • Louise Cradick says:

      I agree the provisions for pre-existing conditions and lifetime caps on benefits are essential provisions. We need repair of the ACA in order to retain what is beneficial and take action to enhance coverage while ensuring cost limitations on insurance premiums and deductibles. Patients need to be able to afford care and treatments. Drug parity is a must.

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