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Brain Tumor ACTION Month 2019

If you’re reading this, your life’s likely been touched by a brain tumor. You have experienced frank conversations about treatment options, changes to your life, and witnessed the firsthand the challenges that come with this disease. For some in our community, “awareness” is a given and the next question is, “how do we move forward?”

For 2019’s Brain Tumor Awareness Month, National Brain Tumor Society’s committed to not only educate people about brain tumors, but provide the opportunities for the community to take action to defeat and cure brain tumors.

“May, observed nationally each year as Brain Tumor Awareness Month, presents a natural opportunity to not only raise our voices and call for greater support for the brain tumor cause, but to embrace the old adage that ‘actions speak louder than words.’”

“With so few treatment options and insufficient improvements in survival and quality of life for patients with all types of brain tumors, NBTS is committed to uniting and mobilizing the brain tumor community to advocate for the change needed to spark investment and innovation in research and healthcare delivery that can help defeat brain tumors,” said David F. Arons, JD, Chief Executive Officer, National Brain Tumor Society. “May, observed nationally each year as Brain Tumor Awareness Month, presents a natural opportunity to not only raise our voices and call for greater support for the brain tumor cause, but to embrace the old adage that ‘actions speak louder than words.’”NBTS, in partnership with the community, presents you with this list of opportunities to get involved in this month:

 

Follow #BTAM and Other Hashtags on Social Media
Get important resources, meet other people from all over the world, and take part in Brain Tumor Awareness activities by following the hashtags #BTAM, #BTSM and #BTVoice on all social media channels. If you’re on Facebook, show your commitment to take action toward patient-focused treatments and outcomes with our new profile frame.

 

#BTSM/BTAM Tweetchat – Sunday, May 5
Our friends at #BTSMChat invite you to their long-running, engaging Tweet chat! On Sunday, May 5 at 9PM Eastern, join brain tumor researchers, patients, care partners, and clinicians and discuss topics related to the disease and what we can do to further progress.

Head to the Hill 2019 (Washington, D.C.) – Tuesday, May 7
The largest brain tumor-specific advocacy event in the country – hundreds of volunteer advocates from 37 states will hold more than 200 meetings on Capitol Hill to speak with Congress about policies that will impact the brain tumor community. NBTS is also partnering, again, with the Collaborative Ependymoma Research Network to hold the annual Ependymoma Awareness Day and butterfly release in conjunction with Head to the Hill.

Congressional Action Day Facebook Live – Tuesday, May 7
The NBTS social media team will host a Facebook Live event on May 7 to answer advocacy-related questions and give you tools to engage with your elected officials on the issues facing our community.

State Proclamations – All Month
An advocacy campaign to encourage volunteers from the brain tumor community across the country to ask their respective governors to declare May Brain Tumor Awareness Month in their state, in conjunction with the federal designation.

 

Fundraising Events

Come out and meet other members of the community all over the country as partake in activities that not only bring us together, but help raise funds for the brain tumor research and advocacy that are integral to affect change.

host of additional community-based fundraising and awareness events will take place across the country, as well as teams participating in NBTS’s Gray Nation Endurance program at the Cape Cod Ragnar Relay, the Colfax Marathon, and Bryce Canyon (UT) 50 Miler. Finally, the Zallie Family chain of 11 Shoprite grocery stores across southern New Jersey and Philadelphia will hold its annual Change Round-Up campaign. This effort, which began in 2016, has raised more than $250,000 for NBTS’s mission.

For more details on how you can stand with NBTS throughout Brain Tumor Awareness Month, go to: http://braintumor.org/btam2019.

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