News & Blog

Brain Tumor Awareness Month

National Brain Tumor Society’s mission to find better treatments, and ultimately a cure, for brain tumors is the driving force behind everything we do. This means tackling the challenges of developing new brain tumor treatments across every facet of the research system. But nothing we do would be possible without the support of YOU, the brain tumor community.

This dedicated community of patients, survivors, caregivers and advocates are among our strongest assets in the fight against brain tumors.  The more our community knows about the current state of brain tumor research and treatment development, the greater chance they can be a force for change. However, it’s important for this exchange to be a dialogue, and as such we always encourage you to share your perspectives on the issues are critical to you. This dialogue is a vital piece of our mission, and we’re using Brain Tumor Awareness Month to continue the conversation in new avenues.

During the month of May, the National Brain Tumor Society will continue to provide thoughtful coverage of research discoveries and news in the brain tumor space, while holding a series of virtual events to both share knowledge and hear from the brain tumor community about your insights and experience.

Here is a list of our events:

Head to the Hill and Congressional Call-in Day

919692_10151573073727808_1752893767_o 2While advocates from around the country attend our annual Head to the Hill event in Washington, DC, the National Brain Tumor Society has organized a call-in day to coincide with our in-person efforts. Find out more about how you help amplify the message that Congress needs to support brain tumor patients via critical legislation.



#BTVoice: Sharing Our Knowledge

BTVoiceWebpageGraphic_180px_final (2)Brain tumor patients, survivors and caregivers share their information, experiences, and knowledge via social media using the hashtag #BTVoice.  Learn more about the initiative at the #BTVoice page.




Community Video Chat: Frankly Speaking About Brain Tumors May 22, 2:30PM EST

Join staff from the National Brain Tumor Society and Cancer Support Community as we discuss the publication, Frankly Speaking About Cancer: Brain Tumors in a video chat. Ask our guests where to find the brain tumor resources you are seeking and learn how you can make a difference in the fight against brain tumors. Register today!



Brain Tumor Awareness Month is only the beginning. Moving forward we are scheduling more events to engage the community. Your feedback and input is a critical data-point that informs our efforts as we carry your voices in the push to improve the way new treatments are discovered, developed, evaluated, and approved for brain tumor patients. We’re looking forward to working together to build on progress and transform tomorrow, today.



  • renee says:

    My mom and aunt both died of brain tumors. And they both had breast cancer.

  • TomHalkinNBTS says:

    Sorry to hear that Renee. Our thoughts are with you, and we are working as hard as possible to find better treatments, and ultimately cures, for brain tumors.

  • Macdaughter says:

    My Dad is currently suffering the after effects of having his 2nd Glioblastoma removed. Our family is finding it difficult to care for him. He went to rehab and is out now, went back in the hospital, out again. He needs 24 hour care that we can’t provide or afford. The doctors won’t put him back into rehab as they want him to start radiation right away. So now he is home- in a hospital bed, alone with a nurse chaecking in on him, he is incontinent and can’t lift his body up in his bed to eat. He is not getting to radiation as it is physically impossible for my mom and I to get him to his appointments. At this point we are frustrated because we are looking at all avenues to try to get him help. Rehabs/ Nursing homes won’t give him radiation and he should be in a facility that can care for him but even if we could find a place like that insurance does not cover it. Medicare is his secondary insurance and he has maxed out on his Primary insurance for the amount of rehab. We are paying out of pocket just to have someone come over to clean him up and that is just for an hour a day and that is back on hold. The Visting Nurse Service has to go back to assess him and set up services once someone is admitted to a hospital. So everything that was set up is now starting fresh and we have to wait. That makes little sense to us as we need immediate help. The house smells horrible and my mom and I are about to lose our minds. We are crying all the time and just frustrated in the lack of help and the long process to get help. We also have an infant in the house to care for and bout work full time. I am not sure if anyone can provide advice on how we can get immediate help. He worked his whole life- productive member of society and he is being left to die because there is just no way to get care for him. Very upsetting.

    • TomHalkinNBTS says:

      Macdaughter, we will email you some resources that can hopefully help you. Best wishes.

      • Macdaughter says:

        Thank you. Any ideas would be very helpful- they are even talking hospice because he can’t get to radiation but I don’t feel all efforts are being made to get him there. I want to get him a wheel chair and see if that helps. In a week he has gone down hill fast.

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