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Tag Archives: pediatric

Advocacy in Action: Updates on the Childhood Cancer STAR Act and Childhood Cancer Data Initiative

The Childhood Cancer STAR Act and Childhood Cancer Data Initiative (CCDI) are major federal government-led initiatives that exist in part because of years of advocacy work by members of the brain tumor and childhood cancer communities. As we reflect back on Childhood Cancer Awareness Month (CCAM) this past September, we want to share updates on […]

NBTS Brain Tumor Clinical Trials Report: Q3 2020

It can be hard for patients and care partners to keep track of new clinical trial opportunities opening across the country, especially during the current public health crisis created by the coronavirus (COVID-19). However, there are many brain tumor clinical trials still actively enrolling patients, and this report provides a summary of the studies that […]

Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act

Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […]

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