The second quarter of every year is, perhaps, the busiest time annually at NBTS, as we ramp-up for Brain Tumor Awareness Month in April, commemorate BTAM — as is tradition — in May, and wind-down from that busy stretch in June (while holding two of our bigger signature event, the Bay Area Brain Tumor Walk and New York City Brain Tumor Walk). Lots of content is produced and shared during these three months, typically, and 2019 was no exception.
Below is a recap of the most popular brain tumor news and blog items from Q2 2019 (April – June) on the NBTS site, as measured by YOUR readership and views. We hope you’ll enjoy catching up on anything you may have missed this spring!
1. Glioblastoma Awareness Day Resolution Passes U.S. Senate with Unanimous Support
NBTS proudly endorsed and championed the bipartisan Senate Resolution 245, designating July 17, 2019, as “Glioblastoma Awareness Day.” Introduced on May 16 by U.S. Senator Lindsey Graham (R-SC), with the support of co-sponsors Senate Majority Leader Mitch McConnell (R-KY), Senators Elizabeth Warren (D-MA), Kyrsten Sinema (D-AZ), Martha McSally (R-AZ), and Ed Markey (D-MA), S.Res. 245 will raise public awareness for glioblastoma (GBM), the most common and aggressive form of brain cancer, and leverage support for research, treatment development, patients, and their families. The resolution passed the full Senate with unanimous consent on June 11, 2019.
We ask all of America to join us in commemorating July 17 as Glioblastoma Awareness Day by paying tribute to those that have been taken by this disease, as well as the patients and families still coping with a diagnosis, and by uniting in a day of action and support to advance research and care so we can conquer and cure this disease once and for all.
2. Guest Blog: My Son Has Brain Cancer.
Top fundraiser from the Northwest Brain Tumor Walk, Vona Weiss, shared a moving personal narrative about her reason for participating in the NBTS event.
3. Celebrate the Victories, No Matter How Small: A Conversation with StacheStrong
In May, we announced that the glioblastoma charity, StacheStrong, was partnering with NBTS to make a second round of investment in the innovative new clinical trial platform, GBM AGILE. After this announcement, we spoke with StacheStrong founder, Colin Gerner, about his organization and why they decided to partner with NBTS to help fund GBM AGILE.
4. ‘This is Your House’ — Head to the Hill, 2019
Our annual advocacy event, Head to the Hill, reached new heights in 2019. This year, 321 advocates from 34 states mobilized on Capitol Hill and held 214 meetings with their senators, representatives, and congressional staffers.
5. Conversation Starters: Lisa O’Leary and Adam Hayden Discuss Their New Virtual Support Forum
The shared experience of participating in online discussions with the brain tumor community offered Adam Hayden and Lisa O’Leary insight into the gaps between current vehicles that exist for those impacted by brain tumors to connect, share, and support each other. They came up with the idea to host a virtual platform where patients and loved ones could talk about the feelings and emotions that accompany any aspect of the brain tumor experience in a safe, welcoming environment, and the Brain Tumor Support Conversations partnership with NBTS was born.
We hope you’ll find these blogs and brain tumor news items interesting and helpful. And, if you are so obliged, please share these posts with your friends, families, and networks on social media. Together, we continue to raise awareness and educate the public about brain tumors and what is being done to end this disease!
And, of course, continue to stay up-to-date on the latest news and information by following NBTS on Twitter (@NBTStweets) and Facebook (www.facebook.com/braintumors), as well as by subscribing to our monthly eNews letter and subscribing to this blog!
Thanks for reading!