The first three months of any year can be a busy time: The winter holidays and New Year’s celebrations are wrapping up and folks are returning to work; children head back to school after winter vacation; and then before we know it there’s a whole new slate holidays and school vacation weeks – Martin Luther King, Jr. Day, President’s Day, Valentine’s Day, St. Patrick’s Day, and Easter, to name a few.
This year the first quarter was also a very active time in the fight against brain tumors. But with all the above going on, it can be hard to keep up with the news. So, today, we’re featuring five of our key stories from January – March of 2016 to recap, round-up, and make sure you’re caught up!
The following posts cover important events from the community, updates on brain tumor research and clinical trials, as well as plans for making impact through 2016:
1. Roadmap for a Successful 2014: Focus. Leadership. Community.
NBTS CEO David Arons lays-out the opportunities for progress ahead in 2016. He also details NBTS’ vision and plans for driving change throughout the next 12 months – all centered around the three principles of focus, leadership and community engagement.
2. Growing Fast: #HeadStandUptoBrainCancer is Trending Now
In January, a brain tumor fundraising and awareness campaign popped up out of nowhere. Like some of the best ideas, it came from the community itself. This blog tells the story of how one group of friends started a social media trend to raise more money for brain tumor research and treatments called #headstanduptobraincancer after one of their mother’s was diagnosed with a brain tumor.
3. So You Heard About Rintega? Here’s What’s Next for Brain Tumor Drug Development…
In March, we learned the disappointing news that a clinical trial evaluating a potential new brain cancer treatment called rindopepimut (Rintega) was discontinued after interim data showed that the therapy wasn’t performing any better than current treatments. However, there is still a great deal of promising research, clinical trials, and other initiatives taking place in the brain tumor field – many led by, or with the participation of, NBTS.
4. Defeat GBM Research Collaborative: Two-Year Progress Report
The Defeat GBM Research Collaborative is NBTS’ flagship research initiative. Defeat GBM is prototype for how to develop and apply a precision medicine-based approach in the brain tumor field. NBTS launched Defeat GBM in early 2013, brining together a team of expert cancer researchers to develop a collaborative infrastructure that enables scientists and clinicians to work together and accelerate progress for patients. Throughout 2013, research teams (making up four “Cores”) were selected and assembled; project plans were finalized; and agreements were put in place with institutions representing these world-class scientists. In 2014, funding initiated and research got underway. Two years into Defeat GBM’s scientific endeavors, the Collaborative is making progress toward its goal of doubling the percentage of GBM patients that survive five years or more.
5. Moving the Field Toward More Patient-Focused Drug Development
NBTS and our partners in the Jumpstarting Brain Tumor Drug Development Coalition – ABC2, Society for Neuro-Oncology, and Musella Foundation for Brain Tumor Research and Education – believe that drugs being developed for brain tumor patients should not only seek to extend patients’ lives and increase survival, but also ensure their quality of life is taken into account, as well. As part of our effort to make measures of a patient’s symptoms, signs, and functions standard for all future clinical trials, our Coalition just helped publish a supplement to the medical and science journal Neuro-Oncology with information from the workshop we hosted on this topic. This is also an area that our CEO David Arons will be focusing on as he embarks on his new work as a member of the National Cancer Moonshot Initiative’s Blue Ribbon Panel.
We hope you’ll find these blogs interesting and helpful. And, if you are so obliged, please share these posts with your friends, families, and networks on social media. Together, we continue to raise awareness and educate the public about brain tumors and what is being done to end this disease!
And, of course, continue to stay up-to-date on the latest news and information by following NBTS on Twitter (@NBTStweets) and Facebook (www.facebook.com/braintumors), and by subscribing to our monthly eNews letter, and subscribing to the blog!
Thanks for reading!
Senior Manager of Communications
National Brain Tumor Society