During July and August 2014, we asked the community to take part in the Jumpstarting Brain Tumor Drug Development Coalition Patient & Caregiver Survey to help inform the ongoing efforts of our Clinical Trial Endpoints Initiative. The response from all of you was astounding. We received more than 1,800 submissions* and learned a great deal more about the wants and needs of brain tumor patients, survivors, caregivers, and loved ones. At the time we promised to share the results back with the community. In January, we shared the first infographic depicting some of our finding, specifically focused on symptom and function measures that were important to patients. Now we would like to share a second, this time centered on those responses we received from caregivers, who account for 54% of the survey respondents:
Brain tumor caregivers perform many roles and are an essential component to the care of brain tumor patients. Being a brain tumor patient isn’t easy and we here at NBTS want to thank each and every caregiver who provides unending support and enduring love to those affected by this devastating disease.
We thank everyone who took our Survey to help inform stakeholders (including patients and caregivers) in brain tumor drug development.
In the coming months look for additional noteworthy results from our survey around clinical trial participation and treatment modalities with the community.
Learn more about the Clinical Trial Endpoints Initiative here.
*Note: not all 1,800+ respondents answered every question